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news on rheumatology and the scanner


The rheumatologist pushed on all my pain spots--and some I did not know existed! OWWWWWWW!



She thinks that I likely have osteoarthritis due to wear and tear on my joints: weight-bearing joints and my hands due to falls on stairs, lots of piano-playing, and dogs pulling on me. The catch is that I can't really stop using my joints, and stopping using them would only cause them to atrophy anyway. So she said to keep doing normal activities and stay on pain meds. If the Naprosyn stops working, there are other NSAIDs I can try. She wants me to have more bloodwork and X-rays just to rule out autoimmune disease.



I was very happy with her. Despite my general discomfort this afternoon due to the exam itself, I am very comfortable with her and I feel like she was very thorough and easy to talk to.



On an entirely different note, I found someone to service my scanner. It will cost quite a bit, and I don't know what the outcome will be. I'll send it off and see what he can do with it. It's only been serviced once in 12 years. I'm hoping that it can be fixed and perhaps I can get another 12 years out of it. With school starting in late August, I really cannot afford to be without a scanner. I actually need it back before then: what I don't need is to get behind in scanning books...

Comments

( 14 comments — Leave a comment )
lorifran57
Jul. 11th, 2006 01:33 am (UTC)
In terms of deterioration and such have you ever discussed 'vitamins' with your doctors?

Just curious. I'm speaking from experience ;) or I wouldn't ask that.
3kitties
Jul. 11th, 2006 03:06 am (UTC)
vitamins
My previous GP suggested glucosamine, and my doctors are aware that I take some pretty potent vitamins due to research I've done on controlling cholesterol since I can't take statins and also some I take in addition to my Topamax. I'd like to hear your thoughts on this.
lorifran57
Jul. 11th, 2006 10:22 am (UTC)
Re: vitamins
I was on depakote for 18yrs. One of the things my original neuro had me do was take heavy regular doses of Vitamin B's. AND folic acid. At one point even iron. I took a large dose multi as well.

Although i have been off the depakote and on lamictal now these past 2 1/2-3 yrs I am still somewhat sticking to certain aspects of the concepts of the vitamins and nutrition.

many of my friends on depakote only 5yrs have experienced knee/joint probs, calcium deficiencies in forms of brittle bones, you name it they got probs based on what the meds leech out of you.

it really can't HURT you so I would very much recommend at least taking something like a centrum everyday and a Vitamin B Complex 100.

Folic acid at least 400-800mcg daily (check what is in the centrum it is prob 400mcg already and Bcomplex may be 400mcg so ya got to balance the math accordingly

Take a calcium tablet/vitaminD too....high level plus magnesium.

Vitamin E large dose as well.

BASICLLY all this in my diet plus good eating habits and large amounts of excercise PREVENTED the more common deterioration that appears to be the trait of depakote and illness issues as is. there is absolutely no sign of probs from meds in me all these years.

All I can say is...it is never too late to start. Do what you can.

Obviously YOU know better what is ok for your body that I do so take my words with grain of salt. ;)

And good luck and feel better :)
3kitties
Jul. 11th, 2006 10:50 am (UTC)
Re: vitamins
Very interesting about the Depakote. I was on it for the greater part of eight years and got off because of PCOS-like symptoms. These have been corrected with large-dose megavitamins... I started out with magnesium, a multivitamin, and some other misc supplements that I found based on researching my other symptoms. I was taking a large dose multivitamin for about a year, and things sort of fell apart after my five-day EEG last fall. I had stopped my vitamins at the time because they play a significant role in seizure control and we wanted seizures on the EEG. Getting them started has been a bear, and I've been paying for it a lot. Time to get a lot more serious because everything you're saying resonates with me. It makes me feel a lot better to know there is a likely reason for this--I'm too young to have this degree of wear and tear, even accounting for the falls. I should be able to carry a bag of salad veggies upstairs!

Time to check the bank balance... Next month I stock the vitamin cabinet and see how I do over time. It could be very interesting to chart. Some of the stuff that was most helpful I can't take anymore because it yanks the Topamax out of my system. *sigh*
lorifran57
Jul. 11th, 2006 11:58 am (UTC)
Re: vitamins
Some health food stores have greater sale prices than supermarkets.

try GNC but also try places like the 'vitamin shoppe' and any private shops cause alot of times the private shops...small places...to compete with the bigger counterparts will discount as much as 20-30% on supplements ;)

If ya got a whole foods around ya that may be good too.

Start with light basics to cut costs.
At least get a vitamin B complex 100 for starters.

All I can tell you is...I dunno. My physiology and personal; care has shocked my doctors. My mom is falling apart from deterioration and not being consistent with her vitamins in mix with her meds and her probs.

I also biked 30 miles a day for 10-15yrs. the thought is that 'that' too may have countered alot of what is happening to others around me with same health conditions.

You are never too old to start ;)

Just do what you can :)

amyb0223
Jul. 11th, 2006 07:27 pm (UTC)
Re: vitamins
Very true! And--hate to bring this up--but the vitamin b will also help with that time of the month thing that most of us women dread! ****smiles**** lollol
amyb0223
Jul. 11th, 2006 07:10 pm (UTC)
Re: vitamins
I have both fibromyalgia and a little arthritis and my doctor recommended gluCosamin but a specific brand because it has a good formula make up and it is most helpful to his patients. I can tell you that I take it if I am in bad flairup or even just for the general arthritic pain I have daily and it helps a whole lot! It is called Cosamin DS. It is different from some that you see--and granted it isn't cheap but it is so worth it. You have to take a few capsuls a day to build up that amount in your system then you take them once a day from that point on.
gypsymommy
Jul. 11th, 2006 03:39 pm (UTC)
I just wanted to say Thank You! Reading this post and the replies has been very helpful. Since I am on Depakote, this could possibly explain some of the aches and pains that I have that everyone thinks are imagined. I'm slightly annoyed that none of my neuros have ever discussed this with me, nor have I ever thought about it.
3kitties
Jul. 11th, 2006 03:52 pm (UTC)
Depakote
My neuros never discussed any of this stuff with me. One said something about "metabolic syndrome" and that sent me on a wild search for info. That's when I decided never to take Depakote again. My cousin has been on it for a long time, and I know that many people take it with no trouble. I'm just not one of them. I just hope the Topamax keeps working for a while because it has been a Godsend!
kookie_chick
Jul. 11th, 2006 03:43 pm (UTC)
I have osteoarthritis in both of my knees. (and I think it's developing in my hands too, although I haven't yet had this confirmed by a doctor) I also have bursitis in both of my knees and my shoulders. So with regard to my knees, if it's not the arthritis flaring up, then it's the bursitis. OUCH.

I get my vitamins and herbal supplements either at Walmart or online. Much cheaper that way!
3kitties
Jul. 11th, 2006 03:55 pm (UTC)
vitamins
I get my vitamins from Drugstore.com--they have all the odd mineral supplements I take as well as the mega multivitamin. Mostly I get GNC stuff there, and they have a good GNC discount program during the first week of the month. My main trouble with affording vitamins is my general income. My vitamins easily run up toward 15 percent of my income--because my income is so low.
amyb0223
Jul. 11th, 2006 08:47 pm (UTC)
Scanner
Is it going to be worth it to fix your scanner or will it cost about that much to buy a new one? I was pricing scanners the other day and they are between $50 and $100 if not a litle more especially since a lot of them these days are those all in one thingies with the printer etc... Just curious.
3kitties
Jul. 11th, 2006 09:55 pm (UTC)
Re: Scanner
I have a personal requirement for a scanner: I only deal with book edge scanners since a lot of what I read is too big for the average scanner. A commercial book edge scanner would cost me about $250, and I would have to use Fine Reader or else further invest in Open Book or Kurzweil. So I'm thinking that if the Reading Edge can be repaired, it will be worth the money. It actuall gives me better results than OCR software often does... Alexis has Open Book, and her scans are pretty good but often I get better results on the same book with the Reading Edge when it's working.
scarletky
Jul. 16th, 2006 08:38 pm (UTC)
I have taken Mobic and it is very easy on the stomach and does a good job for arthritis...
( 14 comments — Leave a comment )

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