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ramblings on the week's doctor visits

I haven't figured out why I get all ready for bed and then get a second wind... It must be something about the pattern of napping and then waking up for a bit of studying. I must break this pattern before school starts again... My goal is to sleep at NORMAL times if at all possible. I do realize that occasionally late nights are necessary. Early in the semester is not the time.

Since I have not posted this in a text post and my non-phone-post-enabled friends deserve it ...

The eye doctor found scar tissue growing around my cornea implant. (I'm a super research case.) This is causing my vision to blur significantly. I told him, "I can pick up objects, but I can't tell one from another." He said, "MM hmm," like it made perfect sense to him. Eventually he will remove the scar tissue, which means more surgery. However, he didn't say when this would be. Apparently he's waiting until the severity of growth justifies the risk of the procedure--every time I have another surgery, there is additional trauma to my eye and risk of further vision loss. So I need it done, but it could cost me, and the doctors don't like to take that risk unless my vision is so compromised that I can't use it meaningfully. This is a bummer to me and one reason I had hoped that something could be done about my left eye. Since nothing can be done, I just have to deal with the situation and wait until things become severe enough to justify the procedure. My vision is not vital, meaning that it won't hurt me to lose it a bit at a time since I have alternative means of doing things. I am still able to use it right now in some meaningful ways, but it's irritating to know that a better outcome is possible but too risky.

The rheumatologist had better news for me. She changed my anti-inflamatory in case I had become too used to Naprosyn. It's entirely possible since I had taken it in the distant past as well as recently. I am now trying Daypro (sp.) and have noticed quite an improvement in the pain level in my hands. I've been able to stick with some tasks for quite a bit longer, and that's encouraging. She also prescribed LidoDerm patches for my back. I tried one last night and slept like a baby--and had no skin reaction. Today I was up doing laundry. This could be a sign of what has been bogging me down emotionally... One thing we discussed at some length was my difficulty in rating my pain: I either don't feel it at all or experience it as quite significant, and there is not much in between. My former family doctor's suspicion that I don't know what it's like to feel good seems more accurate than he might have realized. The rheumatologist asked about my mood, and I said that I was on medication and it was working fine. I have to wonder, though, about the intersection of pain and mood... Mood can certainly affect pain; but judging from my experience since changing medications, pain can affect mood. In that case, who's to say that a downward spiral hasn't begun regarding my pain and mood interactions? What does that say about other people's pain and mood interactions? Who is being treated for depression that should be treated for pain? I have to wonder... (Yes, I do know that people self-medicate for depression with narcotics, and that is another issue. But I'm speaking here of issues of medical disorder.)


( 6 comments — Leave a comment )
Dec. 21st, 2006 05:39 am (UTC)
Great update. I agree with you on the whole pain/depression connection, and I can see that with some cases. However, my depression started before my health started degenerating, so I guess I'd be out of that category that you're refering to...

Dec. 21st, 2006 02:44 pm (UTC)
Hi Sarah,
I'm glad the rheumatologist was able to prescribe meds that seem to be more effective than what you was usign before. I hav eno expereinces with significant pain, so don't know aobut hte possible connection with mood, but I sure think there should be one. Seems godo that your rheumatologist is taking an interest in that as well.

As for hte eye doc visit - I'm sorry you can't go for surgery yet, but I can see where the doctor is coming from. It's like, every procedure coudl cost you your vision so procedures can be done with less risk when "You hav enothing to lose anyway" sort of.
Dec. 21st, 2006 02:54 pm (UTC)
Welcome to the wonderful world of LidoDerm. I'm glad it's working for you. It's the med that's got the least side-effects for me. The skin reaction hasn't happened to me much. After the patch comes off, I wash the area, and sometimes put on some lotion if the skin was dry. Also, you may notice some "bumps". I figured out that sometimes that's because of air bubbles between patch and skin.

I hope these are helpful for you!
Dec. 21st, 2006 04:58 pm (UTC)
Re: Patches
Thanks. I'm going to have to figure out a method for doing this as independently as possible--my back is not an easy place to manage pain in. We'll see how it goes.
Dec. 21st, 2006 04:38 pm (UTC)
I'm glad the doctor was able to find some new options to treat your pain. I hope you continue to feel better. *hugs*
Dec. 22nd, 2006 01:52 am (UTC)
Hey there!

There is certianly a connetion between my pain and mood! All this stuff is intertwined; everytime I'm in pain, almost daily, my emotions are all over the place! This, in combanation with lack of knowledge/inability to implament learned coping skills, has led exaserbation of other medical conditions (panic/anxiety/depression) So, you're not alone...hang in there! Here's to good vision, good health, happiness, and a happy holiday! :)
( 6 comments — Leave a comment )


Sarah Blake LaRose
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