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report on supplements

I took a GABA supplement for two weeks and had an increase in mood control and a decrease in pain. I have now been off it for two weeks. I also put carnitine back in my box to see if it helped my fatigue. My fatigue and general concentration are better, and my mood is reasonably stable. My pain control is poor. I will start GABA again on Sunday. There is a lot of negative press in general about GABA supplements because there seems to be no concrete evidence whether or not it can cross the blood-brain barrier. So my experience is completely my own. However, for me it is significant. I decided it was worth a try since all of the medications that have ever worked for my migraines, seizures, and mood control are GABA agonists. I seem to have made a reasonable judgment. I don't recommend that other people experiment on themselves; but when doctors start saying they don't know what to do, I am not afraid to experiment.


( 7 comments — Leave a comment )
Sep. 26th, 2007 12:32 am (UTC)
My docs always know what to do:

1- increase dosages
2- add another med
3- all of the above

I'm afraid that when I'm older, my liver is really going to hate me. A lot.
Sep. 26th, 2007 12:41 am (UTC)
docs always know what to do
I'm surprised my liver doesn't hate me. I'm on so many meds that adding or changing anything causes a problem with something else. So I figure that if the doctor can do that and then not understand why I'm having side effects and I have to go looking it up, I'll mess with vitamins and look it up just the same.
Sep. 26th, 2007 12:45 am (UTC)
Re: docs always know what to do
You might've read this before on a post or two I made at the epilepsy community, but my neurologist is infamous for talking condescendingly to me.

I asked a question about an increase in tegretol once, and he basically made me feel like a complete idiot for asking. I felt that he thought I had no right in asking about taken some chemical into my body and worrying about it.

Sep. 26th, 2007 01:52 am (UTC)
I've been meaning to share this with you and things have been so insano around here that I haven't had the chance to post in my own lj or email you.

So--last Thursday I went to the Neurologist and had to see the PA because he wasn't available. Anyway, I was talking to him about what could be an alternative as the neurontin is hugely expensive for treating migraines and fibromyalgia... Yiu get the point... Anyhow, he asked me if I was open to trying supplements as while some of them can be expensive the coq10 in particular, some people had success going that rout. When I asked him what ones exactly, he said Gaba, magnesium (mag ox to be exact because apparently magnesium in 400 or 500 mg doces can cause stomach issues), coq10, and also said that vitamin b12 and b2 have worked. He instructed me on how to taper off of the neurontin and I'm in process of doing that as we speak. He then recommended that I try that regiment. Not sure about the b vitamins but have already ordered the other stuff. I found it interesting that we had just got done having this conversation a few weeks before and here a medical person a neurology PA in fact also a migraine sufferer as well is recommending stuff that we had just discussed that I was considering taking and didn't mention to him. He brought it up. My whole point in this caffeine induced ramble, (yes there is one I swear,) is that if it is working for you, then why stop? You know your body and you know what works for you and from what you've just described you were better then than you are now. You have good instincts. If something is working for you, why stop taking it unless you need that proof? He did say that they take longer to be effective than the drugs that one normally takes for such things. In my appt I was reminded that the supplements don't always work for everyone but that fora lot of people they are successful.
I'm sorry about the nausea part. I've been there! *Gentle hugs* Not getting enough sleep won't help you either because lack of sleep exasorbates chronic pain. So, sleep is good for you! Sorry for the novel, but I wanted to encourage you to keep doing what you think is right even if your neurologist may poo poo the idea because at the end of the day it's your body and you're the one that's got to live in it.
Hang in there. Let me know if you need anything!
Sep. 26th, 2007 11:10 am (UTC)
Re: Stuff.
Wow! Thanks for posting this! That is amazing! I'll have to check on that magnesium. Where did you get yours? If you got it on Drugstore.com would you post me a link?
Sep. 26th, 2007 02:45 pm (UTC)
Re: Stuff.
Hey! I didn't buy it from drugstore.com but here is the exact stuff that I bought. Now I was told not to take any more than 400 mg per day. When I asked the pharmacist about the ant-acid part, he said that while it can be used as an ant-acid, it is also very commonly used as a magnesium supplement because you can get the magnesium and not have the stomach discomfort so people with magnesium defficiency can benefit. Oh--I also found out that people with migraines are usually magnesium defficient as are people that have both migraines and fibromyalgia. If you have predisposition for becoming diabetic because of family history apparently there is some sort of lin to a magnesium defficiency in that as well that makes it necessary to apparently take magnesium. Wheeew! Ok. Here is your link.

Hope that helps!
Sep. 27th, 2007 12:45 pm (UTC)
Other people (not doctor's or medical experts) to try gaba for mood. I didn't look very much at it in the beginning because I was still on the zoloft at the time; I'm so afraid to trust doctor's a third time with something that's gone wrong both times I've been on SSRI's now though. I'm a little skeptical, but maybe it's something worth doing a lot of research about to see. No worries; I usually research very very thoroughly when dealing with drugs of any sort even when I've been prescribed them.
( 7 comments — Leave a comment )


Sarah Blake LaRose
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