Sarah Blake LaRose (3kitties) wrote,
Sarah Blake LaRose

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very long health update

You've all been waiting for this, right...?

I was scheduled to see Dr. T. in Detroit next Monday for an endoscopy on my left eye to determine the state of the interior since the cornea is "completely opaque" and discuss whether there is any potential benefit to an Alphacor. This appointment has been tentatively rescheduled for May 15 due to Medicaid's backlog of preauthorizations.

I saw Dr. U. this morning regarding my pain flare-up, which has not abated as they normally do following stormy weather. I do not have symptoms of carpal tunnel syndrome (fortunately). My pain is present in the knees and joints in my feet and one hip as well as my fingers, wrists and elbows; although the most severe pain is in the fingers and wrists. My Motrin consumption has increased to four instead of two, and the four make it bearable rather than gone.

He's giving me a prescription for Naproxin (s0.) for the joint pain and sending me for a blood test and X-ray of my hands to determine whether I have rheumatoid or osteoarthritis. This seems a question of not if but which. The arthritis question has come up before--actually several times over the last 15 years--but no X-rays have ever been done and my pain has never been constant enough to warrant serious concern. I've now had almost constant pain for at least five days. Throwing migraines and asthma on top of this would really aggravate my emotional state, and I'm glad it hasn't happened. Interestingly, I haven't had any seizures; so that sort of throws off my theory about seizures and pain control and tells me that the Topamax is doing its job.

I should note that my emotional state is slightly precarious, mostly due to the fact that I am not able to cry. (See below.) I'm managing so far not to bite people's heads off, but I'm noticing that I'm beginning to get irritable over small things that would normally arouse little response or waves of compassion in me. Apparently I am finding it difficult to muster energy for anything but pain and emotional control and daily tasks right now. I dislike this; but I can't do a lot about it except recognize it and make an effort to communicate it effectively to people who need to know.

I'm not going to go on and talk about Dr. V. There is no Dr. V. I just thought it was fun to do Dr. T. and then Dr. U. I need a bit of amusement lately... Dr. H. is my ENT, and he's handling the reason why I can't cry: polyps in my sinuses. As I said in last night's phone post, if "poly" means "many," dwhat is a polyp...? And what does it mean if I have several polyps? Do I have polypolyps?

Enough attempted humor... I do have several polyps. He can see them on my scan and through his scope. I'll be having sinus surgery on April 28. Hey, my first non-eye surgery! (Wisdom teeth don't count, really.) He says that my sleep quality should improve because my CPAP will work much better when there's somewhere for the air to go. Imagine that! How much sleep AM I missing, anyway??? I won't be able to blow my nose for a week. I forgot to ask if that means I should put up a Paypal button in case people want to donate for my Puffs collection... Maybe I'll register Not really--I'm not rich enough. But it's amusing to think about, and I'm not thinking about pain.

25 percent of polyps are allergy-related. The other 75 percent are cause-unknown. We discussed allergy testing and my cats. He said that if I had been unexposed to cats for at least six weeks and then was exposed without having a reaction, I am probably fine with my cats. I've lived in and out of cat exposure several times since 1990, and my reexposures have gone well; so I'm going to stop agonizing over whether my kitties did this to me. He asked what else is on my tests. Lots of pollens and molds. He said he's familiar with molds and molds would not create these polyps. I can buy that. So maybe they are part of the 75 percent. It's a reasonable thing to assume. He said there is no way to know. All we can do is remove them and go from there.

I wondered just how long I have had this polypolyp problem anyway... When I was a teenager, my doctor said that my sinuses were 90 percent blocked and he suspected that I had no idea what it was like to feel good. No surgery was ever done then. I have to wonder why... Was it just not possible? What am I going to feel that I have never felt before???

I had this silly hope that I would just blow the polyps out while I was in TN. After all, I had been taking this super duper Augmentin, and I had my nasal spray back. ... And I WAS blowing SOMETHING... But he can still see the polypolyps with his little mirror. No more dreams... And I can feel them anyway... And I can't cry... When I do, nothing much comes out my nose... It all goes down my chest and makes me cough like I'm about to die, which then makes me cry about my inability to cry... And what a thing for a person with chronic pain to not be able to cry...

I can't take Motrin with Naproxin... Motrin is what I take for migraine pain... So he gave me Darvocet because Tylenol does nothing. I hope to not need it very much. But I do need it on hand, especially during the westher season. Note to self: do not move to a stormy climate again.

Dr. H. says do not take aspirin, as it makes asthma and polyps worse. I don't take it anyway, but it's good to know..

My coffee consumption has increased quite a bit... I don't like it, but at least it doesn't alter my judgment negatively.


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